[kimblake]

MY SON WAS DIAGNOSED WITH JRA WHEN HE WAS 3. HE WAS IN REMISSION UP UNTIL ABOUT 2 MO AGO WHEN I STARTED NOTICING HIS FOOT TURNING IN & HIS TOES CROSSING. HE IS 13. THE DR EXPLALINED THAT WAS NOT NORMAL WITH JRA AND SENT US TO GET NERVE CONDUCTION TESTING, WHICH IN TURN FOUND MY SON TO HAVE CMT. I AM WONDERING IF HE HAS HAD CMT ALL ALONG VS ARTHRITIS. HE DOES HAVE INFLAMATION, BUT IT SEEMS TO BE IN THE SAME AREAS AS THE CMT AND I DONT WANT TO GIVE HIM STEROIDS IF NOT NEEDED......WE ARE CURRENTLY ON PREDISONE AND OTHER ANTIINFLAMATORY MEDS ALONG WITH NEURONTIN FOR THE TREATMENT OF CMT HAS ANYONE ELSE BEEN THRU THIS?